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Remembering what’s important » Blogging AS an Aspie
Matt has Asperger’s Syndrome (AS), an Autism Spectrum Disorder (ASD) and is writing this blog so that people can gain more of an insight into how people with the condition process thoughts, feel emotions, react to situations and generally handle life.

12 Aug 08 Remembering what’s important

In the last four weeks, I feel like my life has been turned upside down. I don’t know why it turned upside down, it just did. And what confuses me the most is that I was effectively on holiday when everything happened at once.

I was as far removed from ‘the loop’ as professionals could reasonably keep me. It wasn’t just me; my Mum also was not sure what was going on. In some cases, even my Overseeing Manager at the service provider was not informed of things that affected my care.

I’ll briefly explain a timescale. From 15th July to 25th July I was still at the service provider, although (for all intents and purposes) was on holiday from the college. I returned to my Mum’s house on 25th July, and stayed until the morning of the 27th when I travelled independently to my Gran’s house in Southampton. I returned home on the train on Monday 11th August, and have been at my Mum’s since.

The first I knew something had been going on was when my manager called me into his office on Monday 21st July, and was explaining that “to keep me out of trouble and to protect me” he was suspending all of my community risk assessments until I left the Sunderland area on Friday. But I wasn’t suspicious, his reasons seemed acceptable to me at the time, and I had no reason to suspect that anything else was taking place. I should have noticed later in the week when another manager queried me on an aspect of it, but I dismissed it as a usual lack of communication. It should have been blindingly obvious on the Friday when my manager explained that one of my Psychiatrists wanted to speak to my Mum at home.

As it was, I simply took it as routine, and went about my journey home. I wasn’t expecting the phone call from my Mum on Saturday asking me to be home for 4.30pm because the Psychiatrist needed to “urgently see me at home”. I duly returned, and settled down for the meeting. At this point both my Mum and I discover that “there has been some meetings this week about Matt’s plans for the holidays and potential risks”, not that we get to know the content of them.

And then he said something which made me react aggressively, “[the service provider] has had to make a ‘public interest disclosure’ to [a local] social services child protection team about Matt’s interaction with and behaviours toward [my 15 year old female friend]“. I could not believe what I had heard. Not half because the service provider has no primary evidence of my interaction with my friend. I will admit to getting very aggressive, and in part that was due to a trust breakdown between me and the service provider. At present, I’m not letting on how I feel to them, but I’m there next week, and I intend to confront them with it.

I then went away for two weeks, having been reassured that both my Mum and I would be kept informed of the goings-on as they happened. So how did it happen that my Manager was ringing me at 2.35pm on my train journey home, asking why I hadn’t attended a 1.30pm appointment at my house? Simple, nobody had checked my diary, nobody had copied my Mum or my Manager into the relevant letter, and nobody had rang me to tell me about it. The particular department in question had cheek to “be annoyed that nobody was at home when they called”, considering they hadn’t checked that the relevant people (me!) had been notified!

After a discussion that night, both my Mum and I agreed on something, that it appeared a lot had been going on with regard to my care, but for some unbeknown-to-us reason we were no longer felt to be ‘in the loop’.

Reader's Comments


    Thats shocking. I cant believe they can just do all that and not inform anybody!

    Reply to this comment

    Oh, but they did.
    No doubt it was “in my best interests” of course, and that they were simply carrying out their “duty of care”.

    I think I’ll post a follow up tomorrow, after I’ve spent the day pestering my manager for the reports and minutes of meeting…

    Reply to this comment

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